Welcome to Dear Melanoma
Hello there! My name is Emma Betts and I'd like to welcome you to my life and Dear Melanoma.
Dear Melanoma is an honest account of my 24 year old life with Stage 4 Melanoma, which is a terminal diagnosis. It's all about the hopeful and happy highs, the heartbreaking lows, and everything in-between. Yes, you'll probably cry...but I'll make you laugh, too. Pinkie promise!
Please join me. I want you to be part of my life. Celebrate the wins. Comfort me when the not-so-good happens.
Most importantly, I want you to join me to make a difference. I want you to practice sun safe behaviour. I want you to teach your children to be sun smart. I want you to be an advocate for increased access to treatment options. I want you to help me raise money for research.
I want your help.
No, actually, I NEED your help.
I'm in this for the long haul. Are you with me?
My latest blog posts...
Today the Dear Melanoma Facebook Page reached the big 10 000!!! It would be silly to not recognise and celebrate this milestone.
Over the last two years Dear Melanoma has become a very important part of my life. The blog has given me purpose and something to concentrate on when the world around me felt like it was falling to pieces.
I was diagnosed with advanced cancer after returning from working in East Timor for a year – I was only 22. I had no workplace surrounding me that could support me and allow me to continue work. If I did want to work, I would have to go in being honest about everything that came along with having cancer, terminal cancer. Dear Melanoma has become my job. Even though I do not receive a salary, it has given me the structure of a job. It has given me the pride and the aspirations that come with a career. As the blog has grown, so has the roles that have come with the blog – speaker, advocate, published writer, fundraiser. The blog most definitely keeps me busy and limits the time I spend in the ‘woe is me’ frame of mind.
My birthday is less than a month away and I am already feeling the stress and emotions that have become as much part of my birthday as a delicious pavlova!
I have always loved birthdays and I have never been one to not celebrate, but the last few years, since being sick, birthdays have become increasingly difficult.
My 23rd birthday in 2014 we went big because it was my first birthday since my prognosis and the importance of celebrations, due to not knowing if it would be my last, was at the forefront of my mind as well as friends and family. I remember struggling on the day, but not as much as I did last year.
I wrote this a few days ago mid meltdown (see my post over on facebook to hear all about it!)
In December 2014, 12 months after being diagnosed with Stage 4 Melanoma, a terminal prognosis, I wrote about my struggle with living life in limbo. I had gone from meeting with palliative care in January 2014 and planning my death, to December when I was responding to treatment and feeling well. Yes, I still had terminal cancer, but I was faced with the potential of this new immunotherapy treatment extending my life by years.
My husband and I had spent months ‘living in the moment’. Serge stopped working to spend as much time as possible with me. We got married. We went on holidays together. We just enjoyed our time together as much as we possibly could.
This time last week I was recovering from the month of planning that led to an amazing evening of fundraising at 'Through the Looking Glass'.
To be honest, I wasn’t just recovering from sleep deprivation and a few too many wines, but I was experiencing ‘post event woes’. They hit me hard after our wedding and then again after 'Through the Looking Glass' last year. I was expecting them big time, definitely considering I really didn’t have something to move my attention to (we hadn’t locked in our few days away or found out (thanks to all of you) that we would be planning our kitchen renovation). I depend on having something on the horizon to keep me going and avoid falling into deep depression that I cannot budge.
With 2 weeks until Through the Looking Glass, I am so excited to share with you where the funds raised from the night will be going.
One of my favourite things about working with Melanoma Institute Australia is the freedom I am allowed to choose where I want the money to go.
Without further ado, researchers and doctors at Melanoma Institute Australia are developing a unique clinical trial that will use existing drugs to target rare genes in melanoma patients who have exhausted all other treatment options.