It is hard to believe that it has been three years since I was told that I had Stage 4 Melanoma – terminal cancer.
Within a few short months I had gone from a young woman, diagnosed a year prior with Stage 1 Melanoma, to a 22 year old with Stage 3 Melanoma, to finally hearing the worst news possible – I was Stage 4.
I was 22 years old and had already explored and worked in some of the most isolated places in the world and with the most exciting future ahead of me, to a 22 year old stripped of all my hopes and dreams and left to face my mortality. Read More
This week has been bittersweet… definitely more sweet, than bitter.
For those of you that follow Dear Melanoma on social media, you would know that I FINALLY started the clinical trial that I have been speaking about for months! After such a rollercoaster of feelings and having the trial almost taken away from me because of issues collecting viable tissue, on Tuesday I was able to breathe easy. I was in the treatment chair ready and raring to go. It was not difficult to see my excitement, but was super special seeing the relief and complete joy felt by my oncologist, the clinical trial’s team, the nurses, the receptionists and all of YOU!
I definitely had a whole lot of people praying to the Pavlova Gods for this trial. Read More
I haven’t been blogging of late – a combination of laziness and the craziness of life (I know, the contradictions!).
For those of you that follow the Dear Melanoma Facebook Page, you will know that I am in the process of starting a new clinical trial. I say process because I am currently jumping through a million hoops to secure my place. I have signed the consent form, but I still have to have a million and one tests/scans etc to tick all the boxes before I am officially eligible for trial.
As you can see, the clinical trial process is complicated.
I am not new to the world of clinical trials. In February 2014 I started a clinical trial for Keytruda (now on the PBS) and was on the trial for almost two years.
I didn’t really blog much about my feelings and experience of being on a trial, but I have decided that I am going to start a little blog series called, ‘The Musings of a Lab Rat’. Read More
This is probably the most boring post I have ever written with very little emotion or passion mainly because I am not letting myself go to that place. So, a short post to update you on my health.
I think I have been in the frame of mind that if I don’t write about it, I don’t have to deal with it.
I finished radiation to the lesion on my adrenal gland two weeks ago and I was super lucky in that it didn’t make me very sick (except for some very hilarious vomiting incidences – lets just say, thank goodness for the empty soft drink cup in our car!). I finally feel that I am getting back to my normal self, back to work, the gym and pilates. I still have a lot of back pain, but that will take some time and lots of massages! Read More