My Summer with SunSoaked

You have been asking for it and I am finally ready for you! You have been asking to see me half naked and looking somewhat glamorous (rolls and all) in my new SunSoaked Swimwear.

I am not a Style Blogger and want to give you a little disclaimer. You are not going to get beautiful model shots, but instead just me awkwardly posing for my not so professional insta-hubby photographer. These swimmers have been gifted to me, but I have not been paid to write this post or for any of the ‘fashion style’ posts I publish. Why do I always support SunSoaked and the beautiful Kate, founder and designer of SunSoaked? I support her because I genuinely love the designs, they are ‘oh my god’ flattering, and the whole range is based around an emphasis on the need to be sun smart. There is nothing in this for me, except some great swimmers.

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Feeling like old news

Early in the year, someone close to me, someone that should know better, someone that should be one of my biggest supporters, sent a text saying something pretty horrific…

‘You have been dying for two years, it is no longer an excuse.’

Ok, everyone, pick your jaw off the floor and get out those awkward giggles that come out when you just have nothing to say. 

This horrible comment was said in the context of their unhappiness with Serge and I not visiting THEM enough or not calling THEM enough. Obviously I can only put my side of the story forward, but this is someone that seems to have forgotten that they have a car and phone.

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Musings of a Lab Rat: Blog 1

I haven’t been blogging of late – a combination of laziness and the craziness of life (I know, the contradictions!). 

For those of you that follow the Dear Melanoma Facebook Page, you will know that I am in the process of starting a new clinical trial. I say process because I am currently jumping through a million hoops to secure my place. I have signed the consent form, but I still have to have a million and one tests/scans etc to tick all the boxes before I am officially eligible for trial. 

As you can see, the clinical trial process is complicated. 

I am not new to the world of clinical trials. In February 2014 I started a clinical trial for Keytruda (now on the PBS) and was on the trial for almost two years. 

I didn’t really blog much about my feelings and experience of being on a trial, but I have decided that I am going to start a little blog series called, ‘The Musings of a Lab Rat’.

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Life in limbo, again

I wrote this a few days ago mid meltdown (see my post over on facebook to hear all about it!)

In December 2014, 12 months after being diagnosed with Stage 4 Melanoma, a terminal prognosis, I wrote about my struggle with living life in limbo. I had gone from meeting with palliative care in January 2014 and planning my death, to December when I was responding to treatment and feeling well. Yes, I still had terminal cancer, but I was faced with the potential of this new immunotherapy treatment extending my life by years.

My husband and I had spent months ‘living in the moment’. Serge stopped working to spend as much time as possible with me. We got married. We went on holidays together. We just enjoyed our time together as much as we possibly could.

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